The Children's Miracle Network Radiothon was Wednesday, November 14th and Thursday, November 15th from 6:00am until 7:00pm.
THANK YOU everyone for helping raise $33,798 for local kids in need and Children's Miracle Network! We appreciate everyone who helped make this happen from the volunteers to our sponsors and the families who shared their heartfelt stories! We couldn't have done it without you!
KARSON and his twin sister were born with at 32 weeks gestation with Myotonic Dystrophy, an inherited type of muscular dystrophy that affects the muscles and other body systems. Karson and his twin sister, Zoe, were diagnosed 89 days after they were born, the same day that they were to be released from the NICU and able to go home.
Karson and Zoe were home for a little more than a month when Zoe passed away due to complications – her small intestine essentially died. She was 4 months old. Doctors didn’t think that Karson would be as mobile as he is today. He is in therapy at St. Luke’s and has progressed from sitting to crawling, to assisted walking. He is becoming more and more independent and loves to walk with his walker. He is also learning to sign.
Karson is a tough kid and determined to succeed! After Zoe passed he was an “angel baby” – almost like he knew his mom and dad had lost Zoe. He is now starting to play with his younger sister, Faith.
When AIDEN was just four years old, he began to experience some bruising and pain in his legs, nothing too alarming according to his parents. But when his father tickled his son’s knees during some play time, the toddler crumpled to the ground. He was diagnosed with acute lymphoblastic leukemia (ALL) and since his diagnosis, Providence Sacred Heart Children’s Hospital has been his home away from home. He has undergone a regiment of blood draws, spinal taps and chemotherapy treatments.
He is responding well to treatment and continues to remain in remission—but, for the next 3 years he’ll be in treatment which means more spinal taps, more blood draws and more chemo.
With a bright future ahead, Aiden is full of personality; he is both outgoing and courageous. He enjoys playing outdoors and his mom says he is “absolutely crazy about dinosaurs.”
When Trinity was just 23 weeks pregnant, her doctor informed her that she had began to go into pre-term labor. Trinity stayed in the antepartum unit at Providence Sacred Heart Hospital for four weeks before Ainsley was born, still terrifyingly premature.
AINSLEY, who weighed just 3 pounds at birth, spent the first seventy days of her life in the NICU. Despite the sometimes frightening sounds of alarms and bells, Trinity describes the NICU as a “magical place.” She remembers being afraid to change her newborn daughter’s diaper because she was so small, but the nurses helped her overcome her fears and to this day, Trinity speaks fondly of the doctors and nurses who tenderly cared for her daughter during those first few months.
Trinity and her husband like to say that Ainsley “kicked her way into this world.” Today, Ainsley is an energetic 3-year-old who is full of personality. Her parents still call her their “miracle baby” and for her, the sky’s the limit!
When CARTER and his family were headed home from a family trip to Utah, five-year-old Carter began complaining of pain in his arm. Later that week, he awoke in the middle of the night crying from pain in his leg. His parents rushed him to the pediatrician the next morning and received news that his white blood cell counts were very low. Carter was admitted to the oncology unit at Sacred Heart Children’s Hospital and doctors soon confirmed that he had Acute Lymphoblastic Leukemia, a cancer of the bone marrow and blood.
Carter is still in active chemotherapy and although his body is responding well, the treatments make him nauseous and sometimes moody. Through it all, he remains very positive. He often tells his mom to “not think about the grumpy things & only about the good.” He loves to wrestle and run, but his favorite thing of all is playing the Wii!
SAWYER was born at 28 weeks weighing 1lb 13oz. Like many premature babies, Sawyer faced several medical problems including a condition called gastroschisis which essentially means she was born with her intestines outside of her body. In addition, at just 11 days old, she had heart surgery to correct a prematurity defect. After fighting off multiple infections, she was finally taken off the standard ventilator.
Sawyer has had multiple surgeries in her short life and has pulled through all three successfully. The hardest part for Sawyer’s parents has been the feeling of helplessness and not always being able to hold and comfort her. Her parents describe her as “firecracker” and her nurses attribute her feisty attitude to saving her life. Even at just four months old, she is a fighter.
ZACK is your typical healthy soccer-loving 6 year-old. Zack’s family wasn’t expecting to need the help of Children’s Miracle Network Hospitals, but when Zack was playing on air mattress, he took a bad fall. When his mom found him, she instantly knew something was terribly wrong.
Zack was aware but could not speak, breathe or move from the neck down. His mom gave him CPR until the ambulance arrived. Once at the hospital, doctors determined that Zack had injured his spinal cord and would need surgery. He had to lay flat and remain still for the six days before the surgery- not an easy task for an otherwise energetic and active boy.
Since surgery, Zack has shown remarkable courage and is recovering well. He can walk short distances with help and has almost regained full strength to this right arm. He is slowly regaining the strength of his left arm as well. He looks forward to returning to his first grade classroom soon!
ZANE was an active 9-year-old boy with no apparent symptoms when a specialist heard a heart murmur. He and his parents were told that murmurs were common in children, but that it would be worthwhile to have it checked out at the hospital. After the tests were completed, Zane and his parents learned that he had an Atrial Septal Defect, which is essentially a hole in the heart.
In order to repair the hole, Zane needed open heart surgery. Displaying a great sense of courage from the start, Zane told his parents that he wanted to have the surgery done as soon as possible. One week later, he had open heart surgery.
Zane parents talk about how incredible the ICU nurses were and how much support they offered their family. Zane’s brothers helped him pass the time in recovery by playing Xbox video games together. Today, Zane is once again a happy, healthy and active boy.